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Life after prolapse: It will be different, but it will still be great

Life after prolapse

Trigger Warning: This birth story discusses trauma, topics discussed include forceps delivery, pelvic organ prolapse, and mental health struggles. If you are seeking support for your birth trauma, you may wish to contact our Peer Support Service.

Ruby* shares her story of life after prolapse. As an endurance athlete and adventure junkie, Ruby’s prolapse diagnosis following a traumatic forceps birth turned her world upside down. Here she recounts her long, difficult journey to acceptance and recovery.
*Not her real name

Before I became pregnant with my first child, I was the fittest and happiest I’d ever been. Mere weeks before those two pink lines appeared on the pee stick, I’d completed a nine-day non-stop expedition adventure race, another two-day adventure race in my first elite team, and a 50km ultramarathon. 

Oh, and did I mention I’d once paddled a kayak to Tasmania, bushwhacked for 24 hours through thick North Queensland rainforest, and abseiled a skyscraper in China?

If you hadn’t guessed it, I was an adrenalin junkie; so much so that, six years earlier, I’d quit my media career to run an adventure sports business fulltime with my husband. After a decade failing and flailing through a series of dud relationships and unfulfilling career choices, I had finally found my ‘thing’.

Fast forward to 2:20pm, July 15, 2016. The fateful moment forceps were used to hurriedly extract my imperilled firstborn. The moment a tool I naively assumed had been relegated to the obstetric dark ages partially tore my pelvic floor muscle off the bone.

The moment my world was knocked out of orbit.

By about four weeks postpartum, I knew something was up down there. In the background, behind the sting of my badly stitched episiotomy, was an aching ‘drag’; a sense my insides were falling out. I plucked up the courage to inspect myself with a hand mirror, and what I saw was shocking. Tissue that used to be neatly tucked up inside me was now poking out like two fleshy bubbles. 

Heart in mouth, I consulted Dr Google, and promptly got a crash course in pelvic organ prolapse, a condition I’d barely heard of before. Diagram after diagram of fallen bladders, bowels and uteruses seared my retinas. Dot-point after dot-point told me I was doomed; no more heavy lifting, no more high-impact sport, no running. The oxygen left the room. 

From that moment, I plunged into psychological freefall. Many well-meaning healthcare professionals tried to slow my velocity, but no matter how they spun it – this is normal, it will get better, it’s only mild, do your Kegels, take up yoga, just keep running, wear a pad, it’s psychosomatic, change your mindset, take up swimming, take these pills – my lived experience was beyond their comprehension.

Despite my conscientious commitment to physio, hours of counselling, and packets of sedatives, antipsychotics, and antidepressants, I simply couldn’t trick myself into believing it was all in my mind – and I so badly wished for it to be all in my mind. 

Running felt bad. Jumping felt bad. Lifting felt bad. And I leaked urine, too! I wasn’t imagining it. How could I possibly complete another five-kilometre Parkrun, let alone an ultramarathon? 

My life, as I knew it, was over. Sure, I expected to slow down with a baby in tow, and I was looking forward to the change of pace that comes with family life, but I didn’t expect to lose my athletic ability – my identity – so abruptly. That it was all avoidable added an unpalatable bitterness to my grief (that’s a story for another day).

And it was grief. There was PTSD, there was depression – maybe even a touch of psychosis at my lowest point – but mostly it was raw grief. I grieved for the woman I was and the woman I planned to be. I grieved for long runs in the bush, bombing down black diamond mountain bike trails, burpees, and box jumps. 

I grieved for my athletic community, and the special camaraderie of the adventure racing scene. I grieved for the career I’d risked everything for – the career that had saved me from depression. I grieved for my suddenly frayed connection with my husband, which was woven from our mutual passion for adventure sports. And I grieved for the mother I’d hoped to be; the fit, active mum – the role model – leading the kids in backflips at Bounce.

My grief was so profound and debilitating I was involuntarily committed to a perinatal psychiatric unit a few weeks after my baby’s first birthday. When I eventually emerged five weeks later, blinking into the early September light, I made a resolve to look the beast in the eye and snatch back some of my stolen sunshine.

The first step in healing was to find out exactly what I was dealing with. A year of conflicting advice and diagnoses had played havoc with my mental health. The only thing I knew for sure about prolapse was how little about it – from how it’s diagnosed, to how it’s treated, to how it’s experienced by individual women – is absolute. The closest I could get to objectivity was a 3D/4D pelvic floor ultrasound, and for that I would need to fly interstate.

(Why this simple, inexpensive diagnostic tool isn’t used more commonly is puzzling; why are we relying on fingers and eyes when we have more accurate, less invasive technology readily available?)

As the saying goes, seeing is believing. What I saw on that grainy black-and-white screen, in a utilitarian clinic somewhere in the back blocks of western Sydney, confirmed what I had suspected all along; I didn’t have to be an experienced sonographer to see that half of my pelvic floor was MIA. As I contracted on command, I could see my right levator ani barely hanging on – a thin, atrophied shred of muscle trying valiantly to match its counterpart but falling short. It was partially ‘avulsed’ – torn off the bone.

It wasn’t all bad news. My bladder and bowel prolapses were only mild to moderate, and my urethral hypermobility wasn’t off the charts either, although it did account for why I was consistently wetting myself after 10 minutes of jogging (on a good day). 

But my levator hiatus – the gap the pelvic organs, and babies, pass through – was abnormally distended. After a vaginal birth, a ‘normal’ levator hiatus is anything under 25cm2 – mine was 32cm2.

This partially explained why I was so symptomatic despite being consistently told I had clinically mild prolapse. My distended levator hiatus meant there was a lot of dynamic movement when my pelvic floor was under load, and since ‘under load’ was my way of life, I perhaps felt it more keenly than others might. Every time I attempted the things I loved – running, jumping, lifting heavy weights – I could feel my organs slump into my vagina, making me feel like my very bodily integrity was under imminent threat. My fight-or-flight response would then kick in, leaving me crippled with panic.

The chronically ill often describe relief at a diagnosis – confirmation they are not insane or imagining things. While I don’t want to compare my plight with theirs, I did experience a sense of calm – even satisfaction – that day in Sydney. I finally had permission to stop playing mind games with myself. I wasn’t mad, I was right. I was right about my own body. Who woulda thunk it?

From here, I could begin to move forward, and set realistic goals and expectations. First, I found a urogynaecologist I trusted and, importantly, didn’t trivialise my symptoms (and I had to kiss a few frogs, believe me!) He was equal parts reassuring and realistic. Up until that point I’d had too much of the former and not enough of the latter. I’m an optimistic person by nature, and a doer, but I’m also very pragmatic. While in the psych hospital, I had very rationally concluded my elite adventure racing days were over, and to find joy in life again, I needed to make peace with that. I didn’t want smoke blown up my arse about how I could do anything I “set my mind to”. That kind of self-delusion would only set me up for ongoing anxiety and disappointment. 

Instead, I wanted to embrace my ‘new normal’ and make that as happy, healthy, and athletic as possible without exacerbating my symptoms or stressing about wet patches on shorts. I wanted to find my safe limit – the place where I could get the runner’s high without the running. I also wanted to preserve my remaining function for as long as possible – I didn’t want to hasten the need for surgery. Importantly, I wanted to be physically and mentally strong for my family.

To this end, my specialist didn’t rule in or out any activity, but instead encouraged me to be guided by my symptoms. If it didn’t feel right, I wasn’t to push it, but equally, I shouldn’t be afraid to try something purely for fear of making things worse.

To help alleviate my symptoms during exercise I was fitted with a somewhat crude, but very effective, cube pessary. (I had already been using a traditional ring pessary, but it was the wrong shape and several sizes too small). With my cube in place, I felt confident to resume a gentle exercise regime. After more than a year paralysed by pathological fear of movement, I badly craved the heat of exertion in my limbs; a heart racing from effort, not anxiety.

I joined a local reformer Pilates studio and got busy reforming. I was pleasantly surprised. I’d always (erroneously) regarded Pilates as a bit ‘soft’. Not enough pain and exaltation for this adventure athlete! But that studio became my church. I religiously rocked up three times a week to squeeze, lift, brace and hold my way back to better function. 

During my workouts, I concentrated on engaging my entire core through the effort – particularly my pelvic floor and transverse abdominus – while simultaneously exhaling to reduce intra-abdominal pressure. Slowly but surely, some tension and tone began to return to not only my pelvic floor, but also my abdominals. My amazing Pilates coach found I had significant diastasis recti (I thought I just had garden variety mum-tum) and pointed out this was almost certainly contributing to my pelvic floor symptoms – these areas work in unison and weakness in one can lead to weakness in the other.

Through this dedicated training, the act of lifting, bracing, and exhaling through effort – even through mundane tasks like closing my car boot – became second nature, and the persistent sense my insides were trying to escape my body became less pronounced. Importantly, as I gained more confidence in my body, I fixated less on my symptoms. The less I fixated on my symptoms, the less they bothered me.

Indeed, the mind-body connection in pelvic floor dysfunction is huge. The pelvic region is such a personal, intimate, and culturally ‘loaded’ part of the female body. When something goes wrong down there, it is felt four-fold. And if birth-trauma is involved, there’s a constant somatic reminder of the panic, chaos, and fear of that awful event.

To help with the psychological aspects of my injury, I eventually found enormous benefit in therapy, although it took a while to find the right therapist. From the big stuff of processing my birth experience, down to the little cognitive behavioural tactics to get through highly symptomatic days, my psychologist was just as important as my Pilates coach in getting me moving without fear. 

Also critical to my recovery was peer support through the Australasian Birth Trauma Association. Their Facebook support group was my refuge in a world that, sadly, didn’t get physical birth trauma, or why I was so sad. When close friends and family wished for me to “suck it up”, those beautiful strangers on Facebook reminded me I wasn’t alone, and my feelings were valid.

After a few months of concerted rehab and therapy, I decided it was time to get back on the bike, literally. Perhaps, more than running, I missed mountain biking. Pre-baby I was a pretty serious amateur racer and enjoyed not only the endurance aspects of the sport, but also the technical challenge. But the jarring, high intensity nature of it had deterred my comeback.

Until Christmas Eve, 2017.

A couple of old adventure racing pals had come to visit at our new country home and – being adventure racers – had brought an arsenal of gear “just in case”. After lunch, someone casually suggested a roll around the local trails. Next, someone had scooped up my toddler and was gently pushing me out the door. Before I knew it, I was donned in Lycra (which miraculously still fitted), astride my beloved Trek Superfly, and taking my first peddle stroke in more than two years.

I expected a more profound emotional response, to be honest. Given my journey to get here, I ought to have wept with joy. But it was just like, well, riding a bike. It was familiar. The muscle memory, the finely tuned proprioception, had barely dulled. Only my lack of fitness suggested I hadn’t ridden in a while.

As for my prolapse, while it bounced around a bit at first, once the familiar burn of lactic acid hit my thighs, I soon forgot about it. (And with thickly padded bib knicks, who cares about a bit of leaking, right?)

How I’d missed that burn! At my lowest point, in the psych ward, I would often gaze down wistfully at my thighs. Despite over a year of neglect, they had somehow retained a hardness, a readiness. I could still make out their faintly sinuous contours; a vastis medialis here, a rectus femoris there. And here they were, still holding on, keeping the faith for when the season might change.

And it did change. It was summer again.

Since that day, there have been leaps forward and steps backward. By autumn I was pregnant again, the joy of which was marred by a very uncomfortable first trimester dealing with a now prolapsed uterus (the weight of the early pregnancy revealed its lack of support). Fortunately, by week 16, everything lifted as promised, and I enjoyed a relatively symptom-free second and third trimesters. I maintained my Pilates practice throughout, right up to 34 weeks, and I’m convinced that helped my recovery.

For my second birth, I opted for an elective caesarean. Despite being reassured a second vaginal birth would probably be easier and probably not cause any more damage, I was done with probabilities – I wanted certainty. I was 40 years old, I didn’t want any more kids after this one, and my 50-hour first labour had given me as much a taste of ‘natural’ birth as I needed. Frankly, I desired another vaginal birth like a hole in the head.

My caesarean was better than I imagined. It was calm, healing, empowering and joyful – all the things we are told birth should be. My recovery was fast, and nowhere near as difficult as I’d anticipated. Today, I struggle to see the scar, whereas my episiotomy is still giving me grief five years (and one corrective surgery) later.

The epilogue isn’t all smooth sailing, though. For one, my marriage ended when my second baby was just three months old. There’s no doubt the trauma and upheaval of that first birth, and its impact on our intimacy, exposed the cracks in our relationship – cracks too deep to mend. It is something I am still coming to terms with.

Furthermore, the weight of the second pregnancy, plus a bout of gastro followed immediately by bronchitis, all conspired to make things a bit worse in my already compromised pelvic floor. My bowel bore the brunt of it, and I now have a moderate stage 2 rectocele that causes constipation, urgency, and occasional mild incontinence. I often need to ‘digitate’ to empty my bowels, and if you don’t know what that means, you’re not using your imagination!

Because of my bowel prolapse, my cube pessary no longer fits, but I now have a much more user-friendly – and anatomically correct – ‘CPOP’ pessary, which was designed by a woman, is made of soft silicone, and doesn’t need removing at night. After a bit of trial and error with sizing, I am now very happy with how it’s performing, and don’t even notice it’s there.

Paradoxically, as my POP gets objectively worse, my day-to-day symptoms of vaginal heaviness seem to improve. I have a theory that every prolapse has a ‘sweet spot’, and a millimetre shift in either direction can trigger that dreaded dragging sensation. These days, I seem to spend more time in my sweet spot. I also think the brain assimilates these sensations after a while – that’s why some women with large prolapses report being relatively untroubled.

As for sport, while my ultramarathon dreams remain shelved – likely forever – I am okay with that. I still consider myself an athlete. I still train within my limits and try my best to maintain a fit, functional body. But I do it in a more sustainable, gentle, and mindful way. Of course, I do miss running and racing, but if I’m completely honest with myself, I don’t miss the flog-yourself-silly competitiveness that once clouded my enjoyment of the sport. If my injury has gifted me anything, it’s an ability to relish the journey, and take pleasure in quality movement, good form, and the simple pleasure of being active outdoors with my kids. Being a mum has proved to be my best adventure yet.

Oh, I still do plenty. I can pull off some pretty mean Pilates moves, hold my own at the local mums’ bootcamp, and I recently completed a 50km MTB race, albeit at a more leisurely pace than before. My secret isn’t so secret: I just listen to my body, back off when necessary, and modify the hell out of everything – I’m the annoying one in bootcamp constantly putting up my hand, asking for regressions. For example, in circuit classes, instead of sprints I prefer to get my heart rate up with low impact alternatives like mountain climbers. I have a pretty good understanding now of what works and what doesn’t (as much as I’ve tried, jumping jacks and box jumps remain my kryptonite!)

And, frankly, I just don’t give a shit so much anymore. I used to stress so much about ‘making it worse’ until I realised that, with gravity and ageing, it’s probably going to get ‘worse’ no matter what I do; better to stay fit and enjoy the ride. 

At the start of this long, bumpy, at times very bleak journey, a mental health nurse took my hand and said, “This will get better. Life will be great again – it will look different, but it will still be great.” At a time when ending my life seemed like a very sensible, rational option, these words rang hollow.

But she was right. Life is great again. Different, challenging, and not without sorrow or resentments, but still so full of hope, joy and adventure. 

If you would like to connect with a person who has experienced birth-related trauma, please contact our Peer2Peer Support service to connect with one of our Peer Mentors.

If you’d like to support our work so we can continue to help women like Ruby you can donate here.

One Response

  1. Thank you for sharing. You and I have had such similar experiences. You are amazing and your story has significantly helped me, just to know I am not alone. I am 40, two kids, x high level multisport athlete with full levator tears on both sides as a result of forceps and intervention. Most days I am ok, some days I am not. The heavy/dragging days suck. The days I cant run suck. The days my uterus falls forward and pulls on my back when swimming suck. What doesnt suck is my new found love of riding, my ability to focus on my two beautiful kids and my work that would not be there if I was racing again. My hope for the future is that others don’t have to go through what we have and that my cervix doesnt fall out my vagina next time I run across the road 🙂 Thanks for sharing so I feel less alone. Well done on your journey

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